I saw this recently on 23andMe – Living with Scleroderma: https://blog.23andme.com/23andme-research/living-with-scleroderma/. Much longer article. but here are some of the relevant portions.
When Melissa Tarantino talks about facing challenges every day to her special needs students at a middle school near Sacramento, they listen. They all are aware that she knows what she’s talking about.
A former gymnast, Melissa learned at 19 that the pain and numbness in her hands was a symptom of scleroderma, a rare disease that she’d never heard of before. The diagnosis came after more than a year of being treated, including two surgeries for what doctors thought was carpal tunnel syndrome brought on by her years in gymnastics. It was a heavy diagnosis for someone who was just starting college.
When the doctor gave her the diagnosis, she asked:
“Will I ever be able to do a cartwheel again?”
Previous DNA Saturdays posts: https://upsdownsfamilyhistory.wordpress.com/tag/DNA-Saturdays/