I saw this recently on 23andMe – Living with Idiopathic Pulmonary Fibrosis https://blog.23andme.com/23andme-research/living-with-pulmonary-fibrosis/. Slightly longer article.
Recently we chatted with Bill Vick, founder of PF Warriors, a non-profit group for people living with pulmonary fibrosis, including idiopathic pulmonary fibrosis (IPF).
Being diagnosed with IPF, as with many other rare diseases, can feel both overwhelming and bewildering. For many, the first time they’ve heard about the condition is when they get a diagnosis. IPF results in irreparable scarring of the lungs, which progressively worsens lung function. It’s terminal, and there is no cure. But there is some promising research underway, and last year, 23andMe launched a genetic study of idiopathic pulmonary fibrosis. We connected with Bill and PF Warriors through that work.