I saw this on 23andMe – An Ethical Framework for International Research: https://blog.23andme.com/23andme-research/an-ethical-framework-for-international-research/.
If you are at all familiar with 23andMe, you know that a lot of science goes into what we do. But with it have always been considerations about how to do our work ethically and responsibly.
A good example of this is our recent work to address disparities in genetics research for underserved populations internationally. As part of that work we collaborate with scientists working among underserved communities in Africa, the Americas, and parts of Asia through our Populations Collaborations Program.
To ensure that this research is conducted ethically, 23andMe’s Research Team developed a framework that is specific to working in these communities. The framework outlines key ethical principles and best practices for conducting that research that meet the ethical challenges of engaging with populations historically underrepresented in genomics research. In the process, our team developed what could be a model for other researchers working in these communities.