All of Us Research Program Begins Beta Testing of Data Platform – May 27, 2020

I received an e-mail from All of Us – All of Us Research Program Begins Beta Testing of Data Platform – May 27, 2020: https://allofus.nih.gov/news-events-and-media/announcements/all-us-research-program-begins-beta-testing-data-platform. It was just over 1,000 words if I copy/pasted the whole article. I removed almost 400 words from the article. You can read the full article on the link above.

Researchers Invited to Give Feedback on Initial Dataset and Tools

In partnership with our participants—now nearly 350,000 and counting—we’re working to build one of the world’s largest and most diverse datasets to advance health research. Today, I’m happy to announce that we’ve opened our research platform, the All of Us Researcher Workbench, for beta testing. Now, researchers can begin using our initial dataset and tools in studies and tell us what’s working and what we can improve. This moment is an important step in our effort to accelerate new discoveries.

During this beta testing phase, researchers may notice that All of Us does things a little differently than other research programs, including data access. For starters, we aren’t waiting to share data until after participant recruitment and data collection have ended. We launched national enrollment just two years ago and continue to enroll new participants each week, on our way to our goal of one million. We’re also making regular updates to our protocol to add new data types over time, with data curation—a way of organizing data—ongoing throughout. This approach reflects our program’s iterative design. By sharing data early and often, we can get useful feedback to help make the All of Us resource more valuable as we go.

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Features and Limitations of the Beta Platform

This early version of our Researcher Workbench includes data generously shared with us from nearly 225,000 of our first participants, 75% of whom are from communities that are historically underrepresented in research, and more than 45% of diverse races and ethnicities. Researchers will find information from electronic health records (leveraging the OMOP Common Data Model); six initial surveys covering demographics, lifestyle factors, and overall health; and baseline physical measurements taken by program staff.

The platform uses a Jupyter Notebook

environment to power in-depth analyses, with tools to help researchers set up collaborative workspaces and build customized cohorts. At this time, researchers (or their team members) will need experience with R or Python programming languages to conduct analyses on the platform. We do not yet support integrations with other statistical programs or software, but are working to expand analysis tools for future iterations of the Researcher Workbench.

The platform will grow more robust over time with additional data and tools, including genomics, wearable device data, and linkages to other datasets. We’re planning regular releases of new data.

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Researcher Access 

Currently, researchers with NIH eRA Commons accounts may apply for access if their institutions have signed a data use agreement with the program. Right now, any U.S.-based academic, nonprofit, or health care organization can enter into our data use agreement.

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Learn More

We extend a warm welcome to researchers interested in exploring the Researcher Workbench. We want to design this platform with you, to make it the best resource it can be. Your comments and suggestions are central to that effort. Thank you in advance for being generous with feedback so we can improve.

If you’d like to learn more about the Researcher Workbench, please visit ResearchAllofUs.org

. There you’ll get full details about our initial dataset and tools, along with more information about the data access process. You can also sign up for our Research Hub newsletter to receive regular emails on the Workbench and other news from the All of Us Data and Research Center.

Thanks for your support and stay tuned for more updates ahead!

Josh Denny, M.D., M.S.
Chief Executive Officer
All of Us Research Program

 

About ICT Genealogist

Originally from Gulfport, Mississippi. Live in Wichita, Kansas now. I suffer Bipolar I, ultra-ultra rapid cycling, mixed episodes. Blog on a variety of topics - genealogy, DNA, mental health, among others. Let's collaborateDealspotr.com
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